Specialist advocacy service opens

         Last year we announced that Advocacy Centre North has been awarded three years’ funding by the Big Lottery Fund to provide a new specialist independent advocacy service for people living with neurological conditions in Newcastle and … Continued

NNA Annual General Meeting

As a member of the Northern Neurological Alliance we invite you to our AGM. Venue: Irwin Mitchell Solicitors, Wellbar Central, 36 Gallowgate, Newcastle upon Tyne NE1 4TD Date and Time: Wednesday 10 February 2016 at 10.00am.   I have attached an agenda for this … Continued

Our condition this time is …

Epilepsy What is epilepsy?  Epilepsy is a common and serious neurological condition where an individual has seizures that start in the brain. Epilepsy is usually only diagnosed after a person has had more than one seizure. There are lots of … Continued

Profile of someone with epilepsy

A was diagnosed with dyspraxia as an adult and later with sleep apnoea.  His first epileptic seizure took place when he was in his mid-50s; by this he means that he was seen by a consultant and his description of … Continued

NICE’s Approach to Involving Patients and the Public

NICE (the National Institute for Health and Care Excellence) is currently reviewing how it involves patients and the public in its work.  They want to explore how they can continue to deliver high quality, meaningful public involvement in a rapidly-changing … Continued

Invisible Conditions

The Care Quality Commission (CQC) want to hear from anyone with an ‘invisible condition’ and tell them about the care you receive, both good and bad.  Conditions, including neurological, such as depression, arthritis, COPD, heart disease, diabetes are all non-visable … Continued

Guide to self management support

Self management support is when you have everything you need to manage your condition(s) effectively in your everyday life.  That means having the knowledge, skills, confidence and support given to you by all your health professionals. The Health Foundation has … Continued

Using hospital services – inpatient survey data

The Kings Fund and Picker Institute Europe have just published their analysis of inpatient survey data for acute NHS trusts over a nine year period from 2005 to 2013. They analysed 20 questions and grouped them into five aspects of … Continued

NHS patient and public participation

NHS England’s ambition is for patients and the public to be at the heart of everything they do and in line with the NHS constitution and the five year forward view. The NHS is committed to working with and enabling … Continued

Huntington’s drug trial

A clinical trial is being undertaken by patients that may have the potential to delay or ultimately correct the underlying defect that causes Huntington’s disease.  The trial study is being undertaken by doctors at University College London. At the present … Continued