The Brain Tumour Charity

Hi, I am Helen Hills, Operations Manager for the North of the UK on behalf of The Brain Tumour Charity.

The Brain Tumour Charity is at the forefront of the fight to defeat brain tumours, making a difference every day to the lives of people with a brain tumour and their families.

We fund pioneering research to increase survival, raise awareness of the symptoms and effects of brain tumours and provide support for everyone affected to improve quality of life. We are delighted to announce that we have just awarded £4.3 million to fund new and exciting research. For more details of the new initiatives we’re funding, please take a look at the Summer 2016 edition of The Grey Matters magazine.

We are committed to having the greatest possible impact for every person affected by a brain tumour, and to defending the most amazing part of the human body, so that receiving the diagnosis of a brain tumour no longer means a death sentence. We believe that fighting brain tumours on all fronts through research, awareness and support is the only way to save lives, reduce long term disabilities and help everyone with a brain tumour and their families cope with everything that the diagnosis of a brain tumour brings.

My role within the charity is to develop, co-ordinate and promote our Support & Information Service for people affected by brain tumours across the North of England, and to be a charity ambassador in terms of advocacy, fundraising and promotion.

I work primarily with healthcare professionals, for example: clinical nurse specialists: occupational therapists; physiotherapists; speech and language therapists; and psychologists as well as the medical and nursing teams in the neuro-science centres.  I work with them to promote research initiatives and to recruit people into clinical trials whilst raising awareness of the support the charity can offer those affected by a brain tumour.

We encourage people with a brain tumour and their families to register with the charity so that we can keep them up to date with information and send them our latest copy of The Grey Matters magazine.

There is an active and welcoming brain tumour support group in Newcastle for people with a brain tumour and their families. The group meets monthly at the Maggie’s Centre based at the Freeman Hospital in Newcastle on the second Wednesday of the month from 11am to 1pm. The group offers peer and social support and is supported by the clinical nurse specialists and rehabilitation team.

The group invites speakers on topics of interest such as fatigue management or living with uncertainty. Group members also plan their own social and craft activities which the group members have suggested or requested.

I attend the group as often as possible to remind everyone about our Support & Information Service, how to access information and factsheets from our website and our forthcoming fundraising and promotional events.

For more details about the group or our services please don’t hesitate to get in touch.

Support and Information service

 

The charity has an ambitious five year strategy and a series of goals. To achieve our goals the key priorities are to engage the brain tumour community and make the changes vital for success.

A cure can’t wait

We will invest in forward-thinking, outcomes-orientated and patient-focused research.  We will bring about global collaboration to speed up the time it takes to turn discoveries into treatments and cures.

 

Every patient is a research patient

We will make sure everyone with a brain tumour is able to contribute to research and clinical trials, as this gives them faster access to treatments, better care and the opportunity to help defeat this disease.

 

Early and accurate diagnosis

We will work to reduce diagnosis times and improve accuracy of diagnosis so that brain tumours are treated earlier, with the best possible treatment at the right time.

 

Equal access to the best treatment and care

We will work to ensure every person with a brain tumour has the same access to high quality treatment, care and information regardless of postcode, age or tumour type.

 

Improving life today

We will provide information and support to help every person to navigate the system and improve their quality of life.

 

United in our battle to defeat brain tumours

We will lead and facilitate a community that works collaboratively.  We value everyone’s contribution. Every day, we witness the impact of a diagnosis on people’s lives and this makes us committed to finding a cure.  It is imperative we do this as part of a community of people affected by and working against this disease.  Only by working as one, will we make change happen.

 

Helen Hills

Helen.hills@thebraintumourcharity.org

Mobile 07710 709 440

Support & Information service   Tel:  0808 800 0004

The Brain Tumour Charity 

 

 

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